When my Dad started deteriorating via ALS, it was obvious that the disease wouldn’t just affect his body and my sex life. It would affect everything my Dad was responsible for, everything he did for himself, everything he did for the family.
Our Dad over-parented us in many ways. Christmases were always extravagant events, even when we stopped believing in Santa Clause and Baby Jesus, even when I told Greg that he wasn’t a real Jazz fan, that he should just back the fuck off my turf and hop off the bandwagon just as we were walking down the stairs to start Christmas. The TVs worked and functional batteries weighed down the remotes. There was enough beer in the fridge. The yard looked like the cover of a magazine that specialized in beautiful yards and was never covered in dog shit. Light bulbs were replaced the instant they burnt out. Homework help was always available. There were multiple shampoo and conditioner choices in the showers. Rolls of toilet paper were at least an inch thick. The grill had a never-empty propane tank connected to it and chicken shish kabobs sizzling on top. The garage was swept and didn’t smell like a weird combination of dog urine and more dog urine, with a splash of drunk-Dan urine. We had a tool bench. There was chalk next to the pool table (No big deal). No leaves floated in the pool (No big deal). The tennis court (No big deal) was usable and had a new net. The cars were washed and had enough gas in them. The dogs were fed and walked to the point of tired. The spiders (No big deal) in our basement would never bite us. All the bills were paid on time. We had smiles our faces.
Things were pretty great at the old Marshall Manor.
Then the ALS shit-storm hit.
Suddenly our house was transformed into a third world country. There were weeds on our dirty-covered tennis court (No big deal). Dog shit and dandelions covered our yard. We didn’t get HBO on every TV. The hot tub (No big deal) smelled like gay balls and teenager piss. Cobwebs haunted our windowsills and spiders ran our basement like it was a 1920s speakeasy. Rooms were unevenly lit or just darkened with dead bulbs. Letters on our computer keyboard were all scrambled, making typing a “fuck you” letter to Lou Gehrig’s Disease tough. The pantry contained old cans of soup and stall chips that were never good to begin with because they weren’t BBQ, my Dad’s favorite flavor. The grill functioned as a resting place for unfinished 3 AM beers instead as the place where meat was made delicious. Two of our three pinball machines (No big deal) no longer worked. The mini-fridge (No big deal) in the basement had more types of mold than beer, and wasn’t even plugged in. Door handles jiggled. Locks didn’t lock. Our cars filled with Subway wrappers, Red Bulls, sunflower seeds, banana peels, and unwashed glasses stained with week old orange juice residue. No new pictures went up on the wall. Cat piss stains yellowed our carpet. Cigarettes and weed were smoked in the backyard. Raccoons danced in our trees and shit on our trampoline (No big deal).
And those Katrina A-holes thought they had it bad.
We had lost the “Man of the House” and never realized how much he did for us.
So, Greg and I were left to man the ship, which has proven to be a daunting task, given that Greg likes hard-bodied men on ships and I can’t even run or stay in a functional relation-ship. I mean Christ Almighty, when I should be setting spider traps and shampooing cat piss out of carpet, I’m making ship-related play-on-words.
We could both take several courses on how to run a family as well as my Dad did, but it would do nothing. Dog shit would still grace our lawn. The pine needles would remain un-raked. It would still take me three hours to spray off the tennis court (No big deal). The sprinklers still wouldn’t be turned on until mid-July. Two out of the three pinball machines still wouldn’t work.
Because Greg and I were so inept and my Dad was stuck in a hospital bed and no one has invented a way for an ALS patient stuck in a hospital bed to do house choirs using only their mind and eye-blinks, we often relied on other to help us.
No one helped more than our bald, across-the-street neighbor Ralph.
Growing up, Ralph was one of our mortal enemies. I was terrified of him. My neighbors and friends Mike and Bob were skateboarders and would often practice in the street just outside of Ralph’s home. Ralph disagreed with this hobby so he threw his dog’s shit in the road. Mike and his other skater friends retaliated by throwing Slurpee cups over his fence into his backyard. Ralph responded by saving up all of those aforementioned Slurpee cups and setting all fifty something on Mike’s door with a warm “fuck you”.
Things got really bad with Ralph after one of Mike’s friends mooned him as he drove passed in his self-made car (He was an engineers so he built things he wanted, like cars). He charged towards the ass-flasher and said, “I’m going to tear your fucking head off and shove it up your ass.”
He may have tacked on a “you mother fucker” or a “you mother fucking son of a bitch” on the end, but I don’t remember. He did ask a simple question to the group while rolling up his sleeves, “You ladies every get your asses kicked?”
We were maybe 15-years-old at the time, so Ralph had the wherewithal to back off, maybe picturing the headlines, “Bald 60-year-old Engineer Shoves 15-year-old’s Head up Ass Following Mooning” or “Bald 60-year-old Engineer Calls pack of 15-year-olds ‘Girls’ Then Kicks the Living Shit out of Them.”
But the incident still scared the shit out of our asses, potentially leaving room for our heads. We were so scared, in fact, that we would hide in my backyard and launch water balloons at his house. We even got to the point where we filled the launcher with some of the shit he had tossed on the street and tried shooting it back his way. That ended with us saying, “That didn’t work. We shouldn’t have tried that…well maybe once more.”
Plus, he, has he put it, felt “sorry as shit” for my Dad. Ralph didn’t like many people, but he liked my Dad, as he noted when he said, “I don’t like many people, but I like your Dad.” I noted that it’s virtually impossible to hate my Dad, and he responded by giving me a “How could you make such a huge generalization, you fucking dumb ass” stare.
I was still scare of him, but I was more scared of trying to fix broken doors or rake leaves.
So, he would come over and do the “Man of the House” sorts of things and blow Greg and my mind (Note: I could add a gay joke here, something like, “Ralph blew my mind, but I bet Greg wished he would blow something else,” but I’m not going to). We would stand around watching him work, making all the noises one makes at a fireworks show.
Ralph: So you just turn this screwdriver and it tightens the screw and holds the door handle in place.
Greg: Oooooh!
Me: Aaaaah!
Or
Ralph: So you can apply this adhesive to the bottom of this doorbell and your Dad can ring it when he needs help.
Greg: Ok. Ralph. Let me just tell you that that was amazing. You are a genius.
Or
Ralph: It’s called Raid. You just spray it and it kills ants.
Me: Jesus. When did they invent that?
Or
Ralph: If you want to change the name on a car title you just have to go to the DMV and fill out a form.
Me: Ok, when you say DMV, you mean…
Ralph: The Department of Motor Vehicles.
Me: Right. Ok. Didn’t know there was a department for that, but that’s great to know.
But as time wore on, Ralph began to get frustrated with our inabilities. He started to make us feel like shit when we asked him for help. He would say things in a way that emphasized our lack of skills and reminded us that our Father’s life was in our hands.
–“Don’t you have a generator? No, well, don’t you think it’s time to invest in one? I mean what if the power goes out and you don’t have a way to run your Father’s respirator? He would die. Let’s think here.”
–“You honestly don’t know how to load washer fluid into a car? What if you need to drive your Father to the hospital and your windshield is so dirty you can’t see anything? He would die. Jesus Christ.”
–“Do you have flashlights? No, well, don’t you think it’s time to invest in some? I mean what if the power goes out and you don’t have a way to see your father’s respirator? He would die. Come on people.”
–“You have a snow blower sitting in your garage. You just need to fill it with gas then it can be used to remove snow from your walkway. I know it’s hard and you might have to do some work for once in your life, but your Father is dying so it’s time to step it up.”
–“This isn’t a Philips screwdriver. Do you even know what one looks like? Jesus.”
–“Where do you keep your surge protectors? You don’t know? Fuck it; I’ll just bring one over. Because we need to get some of these cords out of the way, or we will trip on one and your Father will die.”
–“Some of your trees are dying. You need to call someone to remove them. You Father’s life depends on it.”
–“Danny, you’re short and have a fat face that women don’t find attractive. And get a haircut, or your Father will die.”
One time Ralph was talking to my Dad about how we needed to remove the queen size bed from the room so visitors had a place to sit and we had more room to maneuver around the bed so we could provide my Dad with the care he needs to keep him alive.
During this discussion, Ralph said, “Bob, you need to put your foot down on this one. You’re still the man of the house.”
Greg and I sat in the room watching basketball and drinking smoothies. Even though my Father sat motionless in his bed, unable to speak, Ralph still considered him a better candidate for man of the house duties than Greg and me. This was slightly insulting.
I noted that my Dad could not put his foot down because he could not move his body. Ralph said that it was a figure of speech and asked if I knew what that was.
I took a sip from my smoothie, producing a smoothie mustache, and retorted, “Yes, I know what that is. We have our shit together. Greg and I are sort of the men of the house now so we make these decisions.”
“No you’re not. Bob is. Dan, you’re the closest thing to it, but it certainly isn’t Greg. Bob is irreplaceable.”
We were doing all that we could. But Ralph was right. My Dad is irreplaceable. And even though Ralph helped as much as he could, it wasn’t the same. It’s like asking a man to fuck your wife: she’ll still get fucked, but it will feel different. In this analogy, our house is the wife and the person fucking her was my Dad but now is Ralph. Sort of a weird analogy, I know, but I’ve been waiting to use it for a while and my Dad has Lou Gehrig’s Disease, so fuck off.
I grew tired of Ralph’s criticism and felt guilty that he was spending so much time at our house helping. So I started to try to take over some of the “Man of the House” duties.
But I wasn’t as good. It took me 45 minutes to change a light bulb I thought had broken in the socket. I had read somewhere that you could get a broken light bulb out with a potato, that it could grip it and spin it out. I started there, with a potato. It didn’t work. Before I knew it I had a cantaloupe up there, then an apple, then a banana, then a Fruit Roll-Up, then back to the potato. It turns out there was no broken bulb in the socket, that all I had to do from the get-go was screw in a fresh bulb. In the end, the whole fixture was destroyed, smelled like the produce section of a grocery store, and needed to be replaced.
It still hasn’t.
We also have a raccoon problem. When I found out about it, I thought about asking for Ralph’s help because fuck raccoons, but didn’t. I figured I could handle this one, that they were only raccoons, and that if they were anything like the raccoons in The Great Outdoors, they would be hilarious. Ralph would have suggested that we call animal control. But I thought standing outside trying to peg them with softballs was a better idea. To this day the raccoons still come and eat dog food from a bowl on our back porch. Ralph probably would have suggested that we remove the food from the back porch. But I sort of like throwing softballs at raccoons; it takes my mind off things for a bit. Plus I need to get better at softball if I’m ever going to make woman’s Olympic team.
It became clear that I couldn’t do it. And Ralph had already established that Greg couldn’t, being gay and all.
My Dad also realized I’m a slap-dick. I would talk to him about how to do certain things, figuring that he could just tell me what to do and I could do it, without Ralph’s help.
Me: Listen, I noticed that one of the dogs walked on the pool cover and fucked it all up. I want to fix it. What should I do?
Bob: Call Ralph.
Me: [Slightly offended] Doesn’t it suck that you can’t take care of your own family?
Bob: [Looking sad]
Me: Sorry. That was mean. I’ll call Ralph.
So, I would call Ralph, our surrogate “Man of the House” and he would fix it while I watched in amazement.
And I’m okay with that now. I have come to terms with the fact that I can’t do certain things. I will never be called a “Man’s Man” or a “Handy Man” or a “Lady’s Man” or a “Man”. But at least I won’t be called “bald” like Ralph.